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        9-13+

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        The Genius of Marian: The Art of Caregiving

        In this lesson, students delve into the role of family members acting as caregivers for those who are ill, elderly, disabled or otherwise not able to care for themselves regularly and efficiently. Students examine what family caregivers do, what their unique qualities are and how they cope with the challenges caregiving presents. Students determine the type of support system caregiving family members need in order to take care of others and themselves.

        The video clips provided with this lesson are from The Genius of Marian, a rich and emotionally complex story about one family's struggle to come to terms with Alzheimer's disease. After Pam White is diagnosed at age 61 with early-onset Alzheimer's, life begins to change, slowly but irrevocably, for Pam and everyone around her. Her husband grapples with his role as it evolves from primary partner to primary caregiver. Pam's adult children find ways to show their love and support while mourning the gradual loss of their mother. Her eldest son, Banker, records their conversations, allowing Pam to share memories of childhood and of her mother, the renowned painter Marian Williams Steele, who had Alzheimer's herself and died in 2001.

        For additional information and educational resources on Alzheimer's disease and the caregiving involved, visit the PBS site for the documentary The Forgetting: A Portrait of Alzheimer's.

        POV offers a lending library of DVDs that you can borrow anytime during the school year — FOR FREE! Get started by joining our Community Network. 

        Lesson Summary

        In this lesson, students delve into the role of family members acting as caregivers for those who are ill, elderly, disabled or otherwise not able to care for themselves regularly and efficiently. Students examine what family caregivers do, what their unique qualities are and how they cope with the challenges caregiving presents. Students determine the type of support system caregiving family members need in order to take care of others and themselves.

        The video clips provided with this lesson are from The Genius of Marian, a rich and emotionally complex story about one family's struggle to come to terms with Alzheimer's disease. After Pam White is diagnosed at age 61 with early-onset Alzheimer's, life begins to change, slowly but irrevocably, for Pam and everyone around her. Her husband grapples with his role as it evolves from primary partner to primary caregiver. Pam's adult children find ways to show their love and support while mourning the gradual loss of their mother. Her eldest son, Banker, records their conversations, allowing Pam to share memories of childhood and of her mother, the renowned painter Marian Williams Steele, who had Alzheimer's herself and died in 2001.

        For additional information and educational resources on Alzheimer's disease and the caregiving involved, visit the PBS site for the documentary The Forgetting: A Portrait of Alzheimer's.

        POV offers a lending library of DVDs that you can borrow anytime during the school year — FOR FREE! Get started by joining our Community Network. 

        Time Allotment

        One 50-minute class period

        Learning Objectives

        • Describe Alzheimer's and its impact on those diagnosed, as well as their friends and family
        • Illustrate the role of family members in caregiving
        • Determine what caregiving involves
        • Assess the impact of illness and related circumstances and caregiving on a family
        • Propose ways to support family members who are caregivers

        Supplies

        • Internet access and equipment to show the class online video
        • Chart paper and markers
        • Any printouts of resource materials downloaded from provided URLs (teacher choice regarding what to print and distribute)

        Introductory Activity

        1. Divide students into small groups. Distribute a sheet of chart paper and a marker to each group. Have one student per group divide the sheet into four columns and mark the columns across the top from left to right: SITUATIONSUPPORT;FAMILY MEMBER; and IMPACT.
        2. Tell the students to share stories within their groups about times when people in their families were in need of more support than usual. Explain that they can talk about any type of situation, from illness to school issues to employment troubles to difficult decisions. NOTE: Students should volunteer for this exercise. Instruct each student telling a story to share how support was offered to the family member in question; who provided that support; and how the situation played out among family members. Ask one member per group to jot down notes in each column and to include particular examples for each category.
        3. Invite groups to share what they discovered through their conversations. After each group presents, have the class discuss similarities across the categories, with particular emphasis on impact. Have the class focus on the impact of stressful situations on family members: How do family members respond? How do they feel? How do they interact with the person in need? How do they cope?

        Learning Activities

        1. Affirm that family members hold a lot of responsibility when it comes to taking care of someone in the family who has a particular need. Explore with students as a class what can occur within a family when circumstances become difficult or stressful. Tell the students they will explore an example of how one family coped during a challenging situation as they watch some clips from a film about a person with a disease called Alzheimer's.
        2. Ask students if they know what Alzheimer's is and to describe it. Use the Intro to Alzheimer's info sheet to give students some background on the disease.
        3. Tell students they will see how Alzheimer's affects a person. Describe the film The Genius of Marian. Show:
          After students view the clips, ask them to share what seems to happen to a person with Alzheimer's and how a person might feel knowing he or she is slowly losing the ability to function normally.
        4. Invite students to write about (in the form of a journal entry or personal essay) and share observations or experiences that frame for them the role family members play in caring for those who have special needs or require a more intensive level of support. Ask them to consider the role family members have as caregivers when a close family member has Alzheimer's. What are the challenges? What are the expectations? What are the reactions?

        Culminating Activity

        1. Validate student responses. Show:
        2. After viewing, divide students into small groups. Assign each group one of the following categories:
          • Pam White's family caregivers
          • Role of the caregivers
          • How the family interacts with Pam
          • How Pam feels
          • How the family feels
          • How the family copes
          Have each group discuss its category and then present the group's thoughts to the class.
        3. Have students reflect on and then discuss the challenges of caregiving, especially when family is charged with the task. Again, students can draw on personal experiences or observations. Probe with students the benefits and downsides of family as caregivers.
        4. Ask students to reflect on how Pam's family members cope with the challenge of caregiving. Broaden the conversation to probe whether what this family does might be similar to what other families do to manage the stress of crisis, illness, trouble and other similar events.
        5. Have students reflect on the situations they discussed in the early part of the lesson, the challenges of Alzheimer's and Pam White's family. Based on these circumstances, what tips might they give to caregivers that will help them care for themselves as they tend to family members in need? Ask students to offer suggestions. Record and group the suggestions according to the themes that emerge (these might include communication, honesty and being informed about the illness/situation.) If you would like to use a prompt, a good choice would be this article, which lays out categories for self-care for caregivers: "Taking Care of YOU: Self-Care for Family Caregivers."

        HOMEWORK: Instruct students to log onto the Genius of Caring page on The Genius of Marian website and find the Story Sharing Project. This project captures the complex emotional experience of caring for loved ones and offers visitors a place to share stories and connect with others. Each student should read some of the stories and then write a personal story, about a family member with Alzheimer's or another issue that requires family caregiving. They will share their stories during the next class and then have the option of posting them on the website. (While the site's focus is on Alzheimer's, the issue of caregiving is universal, and thus a story could be relevant regardless of the topic.)

        EXTENSIONS

        From the Front Lines

        In the film, students observe how Pam negotiates and responds to the impact of Alzheimer's on her mind and body. Show Clips 1-4. Have students further explore how people negotiate debilitating circumstances that complicate their lives in a significant way. Use all or some of the following discussion prompts:

        • How do people respond to these challenges?
        • How do they handle what could happen to them over the long term?
        • What support systems do they need?
        • What support services do they need (i.e., external caregivers)? What are the pros and cons of these support services, particularly from the perspective of the caregiving family and the person living with Alzheimer's?

         

        To address these questions, students may find it helpful to read some stories. Possible sources include:

         

        The Economics of End-of-Life
        Pam White's resources allow her to remain at home, receive quality health care and later, as the illness progresses, have a personal health aide. But not everyone who has Alzheimer's or another terminal illness has the economic capacity for this type of care and treatment. Socio-economic status, unfortunately, plays a role in how terminally ill people live and die. Students can read the article "Alzheimer's, Poverty Split Elderly Chinese Couple", which introduces a couple dealing with Alzheimer's differently than Pam White and her husband, largely because of economics. Invite students to compare and contrast the two stories and then discuss how all people, regardless of their income levels, can receive equitable health and related long-term care when they are terminally ill.

        From History to Risk to Diagnosis: Exploring Alzheimer's Disease
        Students delve into various aspects of Alzheimer's to understand everything from its formation in the brain to its impact. Students can be divided into small groups to research and present on one aspect of the disease, using the documentary The Forgetting: A Portrait of Alzheimer's and its website, particularly the page withmaterials for educators. As a class, students can explore medical and scientific activity to date centered on researching and fighting the disease.

        RESOURCES

        Administration on Aging: National Family Caregiver Support Program

        Alzheimer's Association: Kids & Teens

        Alzheimer's Society: Explaining Dementia to Children and Young People

        Caregiver Action Network

        Family Caregiver Alliance

        KidsHealth: Alzheimer Disease

        National Alliance for Caregiving

        The New York Times: "Caring for the Alzheimer's Caregiver"

        A Quick Look At Alzheimer's: Five "Pocket" Films to Increase Understanding of a 21st Century Epidemic

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